this is where you hear the theme to twilight zone in your head...

So I didn't get allot of sleep last night, too many things swirling in my head... this morning I got up early (7ish) and although should have gone to run/walk I didn't I decided I'd look through Ben's old photo albums and came across this...

its not that I didn't know those clippings were in there, I have seen them and even read them a dozen or more times.. they are the obituary and articles about William "Brad" Rusche

Brad and Ben at his Mission Open House 1993

Ben and Brad were on the Varsity Soccer Team together, Ben was Sweeper (right in front of the Goalie on the Defensive line) and Brad was just in front of him Stopper, I'm sure I've screwed up that mental image just know they had each other's back on and OFF the field... and that is why we named OUR Brad after him...

While Ben was on his mission in Wisconsin he got word that Brad had passed away suddenly from what they think was a heart attack.
he had to quit the Cal Poly Pomona soccer team due to a heart arrhythmia and some heart symptoms he was having.  (yes my cousins who went to Brea O Linda he is the one the monument is for on the stadium field)..
there is no way of knowing if what he had and died from is even remotely close to what OUR Brad is going through being diagnosed with but the similarities are a little spooky.. the thing we would be most worried of in our Brad's case is "Sudden Cardiac Death"...

another kind of spooky thing is we've always commented a bit on how much our Brad kind of looked like Brad Rusche, tall skinny with blonde hair, also Brad R was so fast I mean when he got going you didn't want to be in his way.. very much like our Brad.. like I said.. if I didn't know this to be completely true I would think I was reading a novel!!...

So there are my thoughts this morning as scattered as they may be... I have thought allot about finding Brad Rusche's parents, Ben's family didn't know them VERY well but of coarse they/we saw them and visited at every soccer game I had even been to their home a few times such nice people.. I've done a couple of Internet searches but have come up dry so far and even if I did find them what would I even say to them.. who knows.. we'll see where that goes...

am I the only one who is hearing the twilight zone music about now.???

knock, knock, knock.. is this thing on???!!! i'm guessing my previous message of "I"VE HAD ENOUGH" didn't go through!!!

so this is word for word (actually cut and pasted) from FB so if your seeing it in both places no need to continue you've ready read it...
beware VERY LONG!!!

http://www.sads.org/About-SADS/Long-QT-Syndrome

ok so EKG today confirmed the prolonged QT (link above has definition its very complicated and I still don't really understand it).. will have genetic testing orders done Monday (scheduling this may get tricky w/ insurance it is VERY expensive but cardiologist says insurance will pay it just may take jumping through some hoops which his office has done many times and know how to do it) to see if he has long QT Syndrome, there are 3 degrees (or levels) of long QT syndrome dr is fairly certain IF he's positive for syndrome he would have the most mild degree because he has NEVER had any symptoms, ie: chest pain, dizziness, seizures, shortness of breath etc. if he has the most mild he'll be on a beta blocker and watched fairly close but can still do sports IF he has the other 2 no sports and we talk about surgically implanting a defibrillator.. he also has to wear a cardiac monitor for 24 hours but since the boys have youth conference tonight dr said we can do it sunday-monday morning.

Ben and I have an appt w/ a Cardiologist on July 2nd to get evaluations, make Echo appts and get set up for genetic testing for US... 

they are looking at Hunter's EKG again to make sure they didn't miss this in his (like they did in Brad's first) and KayLea has an appt first week of August to check her out...

first I am so thankful for Medical doctors... I kept thinking today.. what if we had never known any of this and something awful had happened to him... this is un-diagnosed very regularly it is a hard thing to find and you don't find it unless your looking (ie: Brad is almost 16.. this week is his b'day.. and we have NEVER suspected a thing!) it is diagnosed ALLOT in autopsy's of sudden cardiac death's of young people.. (thanks google for informing me of this fact!) 

so for now we wait... he can still do football practice.. we had to be very careful about him NOT getting dehydrated and dr has said he needs to take it easy, no full force weight lifting no full force sprints and no long distance running (thankfully for Brad we didn't know any of this before his 50 mile hike!) I'm going to talk to his coach on Monday and he's been put on a very low dose beta blocker for the time being..

Ben is feeling some pain from his Oral Surgery today (yes I got all the info about Brad while in the waiting room of the Oral Surgeon's office today) it was an interesting ride home telling him about Brad while he was still loopy from the anesthesia, had to repeat myself several times and i'm still not sure he remembers it all although just a few minutes ago he said he think he's gotten the high notes of it all.. I had to leave him for about 2 hours to get Brad's EKG done which I wasn't planning so I raced home to him in allot of pain and out of gauze to pack his mouth so had to stop to get him more gauze.. but he's got pain meds on board (we had some confusion re taking vicidan every 4 or 8 hours.. its 4 thankgoodness!)

boys are at youth conference for the night and all day tomorrow the girl and I are going to go see Brave (as long as Ben is ok to leave on his own at home) and right now I really want to go to bed.. 

if feels a little like i've lived a month in just about 10hours.. again I have an amazing family who can give me the lift and support I need over the phone so I don't want to go run my car off the road!!! I am so lucky 
of coarse our saga is to be continued...